Book of the Month: June 2015
The majority of Americans say they would prefer to die at home, but honoring this request can be difficult. Some progressive diseases require extraordinary amounts of hands-on care, which may grow to be more than a patient’s caregivers can provide. This doesn’t stop people from doing all they can to keep their loved one safe at home, and close at hand, for as long as possible. In fact, this conviction is the basis of our book selection for June.
Author Susan Allen Toth was doing less writing and more caregiving for her husband, James, as his Parkinson’s disease progressed and related dementia began to develop. She tried to turn to books for guidance — books on his disease, books on caregiving — but the ones she found seemed to be written after the fact, in wistful hindsight. None of them spoke to her in-the-moment exhaustion and feelings of frustration, guilt, and loathing of tasks as inane as teeth brushing. So she decided to write that book herself, warts and all.